I Am Approved for the Vagus Nerve Stimulator!

Hey friends!

vagus-nerve-stimulation-publicTwo weeks ago I had an appointment at one of the nearby hospitals to see if I would be approved for the Vagus Nerve Stimulator!! Guess what?! I am!!  I will be having the surgery in about three months, which I am very hopeful for. Hopefully over time it means that I can reduce my medications which make me so tired. I am sure you know what I mean. Some days I feel like a walking Zombie, so it would be great to feel like a “normal” person again. (Whatever the f*** “normal” is).

I was anticipating that the Vagus Nerve Stimulator would be inserted before the end of this year, but it’s okay that I have to wait. I mean, ideally it would have been inserted by the end of this year and it would start to work. One of the interesting things about the VNS is that it can take some time to see if it is effective at controlling seizures. Unfortunately, after the surgery, only part of it can be taken out. I makes me laugh when I look at the diagtam of someone with a VNS; it makes me feel like a bit of a robot. I guess it means when I take an airplane I will have to carry a letter explaining why I set off the machines.
In the past couple of weeks my seizures have been more active, which is hard to manage. Especially this past week my seizures have been out of control and last Tuesday it felt like someone had stuck needles into my eyeballs on top of the seizures. It has been an intense ride! It is also disappointing because I had to miss an event that my friend bought me a ticket for.

So, that’s where I am at.

Love you lots!
Sita and JoJo xox

100 Days of Gratitude-Day 6!

Hey friends! I hope you had an amazing day! I did- I got some work done and then went out! It was good times all around.

I am SO SO thankful for tea! It might seem silly as I suffered a massive burn from a seizure and tea incident (donhappiness-looks-good-on-you‘t worry, it’s all healed up). but I love tea. It has so many amazing qualities that can help your body and mind. Today my tummy was a little upset so I had Peppermint tea and BAM! I felt better! I would definitely have to say that my go-to is Earl Grey Tea, but I love Bengali Spice, Masala Chai, Jasmine Green tea and Creme de Caramel Green tea.

Do you love tea too??

Lots of love,
Sita Gaia and JoJo xoxo

100 Days of Gratitude-Day 5!!

Hey friends! I am feeling good today, as I have accomplished the work that I set out to do! As my mom would post *arm pump*!

sita-sahasrabudhe-headshotI have been thinking about Tedx a lot today, and I am really thankful that I was able to do a TedxTalk this year. If you haven’t seen it yet- check it out here! Being part of TedxStanleyPark was a real game changer. I went into it wanting to talk about people with Epilepsy and Disabilities, but some of my fellow speakers really changed my game with regards to what I am doing with my life. I would have never imagined this, but now I am working hard to become (or am I already one??) a solopreneur. (Which is like an entrepreneur, except it’s just one person.) This person (Hey Isabelle, you rock!) saw something in me and gave me an awesome butt kick in the right direction. When she saw that I was falling out of her community, and even stopped communicating with her, she told me that she thought I hid behind my Epilepsy. I was SO upset, but hey it’s because the truth hurts. It was like a hand pulling me out of the quicksand and saying “Hey! I believe in you! Now YOU have to believe in you, too!”

That aside, the actual experience of Tedx was amazing. I actually had a platform to talk about chronic illness, and besides graduating it was probably one of the best days I’ve had thus fat. So yeah, I am so grateful for being able to speak at Tedx, the people that I met, and how much of a game changer it was!

Lots of love,
Sita and JoJo xoxo

100 Days of Gratitude-Day 2

friends

Tonight I am pooped, but I just thought I would let you know that I am thankful for meaningful conversations and relationships. This was shared with me 4 years ago today, and still has just as much meaning.

There’s some people in this lifetime that make every day fuller, every blow softer, and every smile wider. Sita Gaia, I am so very, very lucky to have you as a best friend. On the days that I struggle, you grab the end of my rope and pull me up, even if you yourself are standing on the same platform as I am. As you head home to BC, (even though I know it’s for a good reason and that you’ll be back in a couple of months), I want you to know how much I will love and miss you while you’re gone. You’re my warm blanket in friend form, and I am so very, very proud of you for staying stron

Lots of love,
Sita Gaia & JoJo

100 Days of Gratitude- Day 1!

heart-hands

Hey friends,

My friend is doing a 100 day of Gratitude Challenge, and she asked me if I would do it too!
So I said sure, and here we go. Day 1 of 100 Days of Gratitude. (PS this is hard to choose ONE thing because I have so much to be grateful for!)

Today I am grateful for the ability to relax and read and spend time on the computer when my stomach isn’t feeling well. It is really nice to spend some quiet time and do some thinking.❤

Lots of love

Sita Gaia & JoJo xox

A Blog about Living a Whole Life With Epilepsy