Making Head Safety Fun!

IMAG1422Hey everyone! I have finally decided to talk about a topic that is very hard to talk about. I wear a helmet. I was super embarrassed to wear one for the past two years, so with one of my helmets I always put a toque or beanie over it. It looked ridiculous in the summer (or I  looked like a hipster in a dress) but I didn’t want to reveal my secret.

When I got my first serious concussion my Mom put her hands down and said “that’s it!!” So I had to get a new helmet from OptiCool. The helmet was pretty cool, as the brand suggests, but I was still embarrassed to wear it, as it made me feel like a dork.

Today, I went on a culture crawl with my Mom, and there was a table where you could decorate your own hat! Since I didn’t have a hat, I decorated my helmet! I love my helmet so much now that  I don’t even want to take it off. As my friend Cimarron would say “You trailblazer,  you”.

So look, safety doesn’t have to be dorky or uncomfortable. If you don’t get an aura before a seizure, you can still make a helmet fun. It’s also a great conversation starter! Also consider this- wouldn’t you rather be safe than have multiple concussions? My new and improved helmet also makes me feel stylish!!

(Here’s a side view of my new and improved helmet) IMAG1421

Happy Sunday!

Love,
Sita Gaia

My Worst Experience in a Hospital

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Hey friends,

I hope you are having an amazing day. I am writing this post-ictal. Which essentially means I am writing this after having a seizure. If I regret this post later I will just delete it.

This past Monday I was in the Toronto airport, ready to head home. I was feeling confident, and remember taking a small step as I waited to go through security. Suddenly, I blacked out and was taken out of the security line. Two Paramedics were called and they came and checked all of my vitals, which ended up being okay. I was told by Air Canada that I was not fit to fly so I was whisked to the hospital.  I called my friend’s mom- and after the seizure she said I was hysterical when I called. I ended up going to the Etobicoke hospital which is the closest hospital to the Toronto Airport. The Paramedics were amazing, but when I got to the hospital, I was hardly greeted by a rude nurse who mumbled his name. I couldn’t even figure it out for myself as he had turned his name tag around so I couldn’t actually see his name.

The other nurses weren’t great either; they stood around bitching about their clients instead of actually helping them. Some of the medical team did not believe that some of the seizures I had were actually seizures.

When I was on the phone with my mom I remember saying “OH YEAH. MY NURSE? HE’S A TOTAL ASSHOLE!!” Little did I know, he was right there.

Needless to say, the medical staff was useless, it was dirty, and I was miserable. I have been to many hospitals and have come across many nurses, but this was absolutely horrendous.

My friend’s Mom said she would write a letter of complaint? Will I do the same? I am not sure. But all I can say the quality of care was below sub-par.

Do you have any horrible hospital stories? Share with me!

Love,
Sita Gaia

 

 

Travelling Alone with Epilepsy

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Hey friends!

As you may have noticed I have been MIA this past little while. That’s because I have been on a holiday to Montreal, Ottawa, and Toronto. My friend was getting married, so I decided to make a whole trip of it.

I have been staying with friends my entire trip, so I have no Mom or Dad to run to if something goes wrong. Fortunately, my friends are very supportive of my Epilepsy and know what to do in the event of a seizure, but I have been working hard to avoid my seizure triggers. Today was a particularly seizure-filled day. I ended up having a cluster of 5 seizures within five hours. Yikes! Thankfully my friends were supportive and actually managed to catch me when I was close to falling.

I also have SUPER exciting news! As of July 29, 2016- Life at Full Volume has been running for 4 years!! I am so grateful to you, my reader, who has been able to help me keep this blog going!

I hope your summer is going AMAZING!! Love you lots xox

Why It’s Hard for Me to See People in Hospital

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Hey friends, I have seen my fair share of hospital beds. Due to uncontrolled seizures, accidents, on going tests. You name it. It almost feels like I have the “Hospital corners” in my stories with family and friends.

I need to remember though, that when I have had family and friends in hospital- it is not about me. It is about them. My brother has been in hospital for some very serious surgery. One of these times it was when he was visiting me in Ottawa, and I couldn’t bare the thought of seeing his usual self reduced to a weak and hurting person.

I told my cousin that I couldn’t come to the hospital and he reminded me that we need to “show up for family”. He couldn’t be more right. Me not visiting my brother in the hospital wasn’t about me, but  about him. I needed to be there for him. I remember my own countless hours in the hospital where I anxiously anticipated someone coming to visit me for a couple of hours. It was the highlight of my day.

When I visited my brother….was it painful? You bet. Was it worth it? Hell yes. I still remember a weak smile forming across his mouth as he asked to try on my winter hat (Which he had previously made fun of me for.) I let him try it on, and we walked slowly
around the hospital halls, with all of his IV’s and machinery attached to him. I told him slowly about my day and how my university classes were going.

My brother and I have never talked about this experience, but it was this one situation that taught me that you really do need to show up for friends and family- regardless of how uncomfortable it makes you feel.

Ultimately, showing up through a visit, phone call (visit is ideal if you are close by) says to the person “I love you. I care about you. I hope your health gets better really fast!”
It makes the person in the hospital feel less alone, which is essential.

Lots of love! xox

Feeling Stuck With My Business

Hey friends,
How are you doing today? I hope you are well, wherever you are in the world.

I am working on my new business, and although I have the help from some very skilled experts, I am personally feeling stuck in the creation of my business.

I don’t have experience in business, so I am coming at everything from a Social Work angle. Although you need failure to succeed, I am not getting at what *exactly* I want to do in a crystal clear way. I did organise my desk, because “a cluttered desk is a cluttered mind”. Let me tell you, having a tidier desk is a lot nicer!! It’s not done, but it’s a process.

I never anticipated becoming an entrepreneur, but after my TedxTalk, I said “HELL YES! You can’t ignore your call to action! (You gotta watch the video to see what the call to action is😉 )

So, that’s me today. A mumbo jumbo of reidentifying myself, where I am going, and what, essentially do I want to help my clients with Epilepsy feeling.

Hope you’re having an awesome day!
Lots of love xox

When You have an Excited Type of Insomnia

Hey friends! I am writing this to you at 2am my time on a Sunday morning….or perhaps it is still very late in the night for a Saturday. Regardless, I can’t sleep.

I am taking a trip in officially 19 days to Montreal, Ottawa, and Toronto to see friends that I haven’t seen in 2 years. TWO YEARS! These buds are from university, and I still make a pointed effort to stay in touch with all of them even if it’s a “Hey how is work going?” Or “How’s your love life??” I think both can be dreaded questions to answer for some but it’s a good way to keep in touch.

I am so excited I am making lists of things I need to do. Some of them are embarrassing, but whatever.

1. I NEED to buy new panties! Just like socks, all of mine have vanished. I am looking for cheap panties, so unfortunately no La Senza for me.😦

2. I need a book or two to keep me occupied during my flights, and Greyhound bus trips. I think the Salvation Army  nearby keeps a stack of books.

3. Oh, did I not mention that I am travelling out East because my friend of ALL my friends is the first to get married?! She has been engaged for two years, and I knew that she was going to be proposed to before she did. It was a little secret between me and the groom. Regardless, I need to get them a wedding gift.

4.I need to book my greyhound bus trips, and trip home from Toronto.

5. This might sound silly, but I want to print a few pics to keep in my purse to show friends what I have been up to these past two years. This year in and of itself has been amazing!!

I am so excited I don’t know what to do with myself. I am a super excitable person, as most of my friends and family know, so maybe I need to practice my yoga every day to chill out and not trigger any seizures. (Yes I have had a seizure from being excited!) lol I was accidentally a dummy and booked the red eye flight to Montreal, so I will take some ativan on the flight to prevent seizures and so I arrive in Montreal in one piece. haha my history of flights and seizures is not in the clear, but that’s for another day.

Wooohooo!!  I am so excited! Please make Sunday come faster!!

What are you excited about in your life? Post in the comments down below! Don’t be shy! ((I told you I need panties for heaven’s sake😉 )

Lots of love! xox