1 Year Anniversary of Life at Full Volume Blog!!!

Wow. So I can’t believe that today is the one year anniversary of Life at Full Volume . Where has the time gone?! I guess it has gone towards living, I suppose, along with learning life’s lessons. Since starting this blog I have learned some valuable lessons about how to actually write a blog that people will want to read and be interested in. Making it topic specific has helped, and connecting with other bloggers who blog about Epilepsy has made it easier to navigate around Word Press. It’s also made it more fun, because I feel like I’ve made a few friends along the way who support my posts, no matter how short, long, or ridiculous they are. I’ve also learned that being open and vulnerable makes me more reachable, because people want to know that there is someone else out there who is going through something similar-such as ongoing seizures, fatigue, and dealing with meds. Writing from the heart makes writing SO much more accessible, and you can feel a connection with the writer and it makes you want to come back and read more.

From July 29, 2012 I feel like I was still in denial about how bad my health was. Being in denial about the frequency of my seizures is what probably kept me sick, and which is why I went back to school in September and ended up taking a year off. When I look back on it, my judgement was so clouded. I wasn’t doing what was best for me. I was doing what was best for what I thought I ‘SHOULD’ be doing. I felt that I needed to go back to school to get school done because I needed to complete it in a certain number of years.  In reality, I was not in the best health to be able to do that.

Wow. It feels amazing to have been able to do so much personal development over the past year and I feel like I have changed so much! Not only do I better health-wise, but I feel better mentally and emotionally. Anything that was negatively holding me back is in the past, and I am working to live towards a positive future, and I’m not letting things hold me back. I’m not trying to sugar coat things, things are up and down, as life always is.  Seizures happen, somedays I feel blue, or stressed out, but I feel stronger. How far have you come in the past year? What has your journey been like?

Anyways, thank you so much for continuing to support me! It feels amazing. I’m so excited for another year of an amazing adventure in Blog-land. I look forward to continuing to post about Epilepsy, and perhaps about some new topics! Stay tuned for another awesome year. It’s gonna rock.  xox



Post Seizure Blues

This morning I woke up feeling moderately blah. Maybe it was because my dreams of having tame goats as pets were more exciting than this past weekend has been. This week in general has been really good, and I feel like I’ve been hitting my stride. I’ve been busy, and I have secured a volunteer position for the rest of the summer. I got to a place where I forgot what it was like to have seizures, and I wasn’t always worried about suddenly dropping into a seizure and losing control of my body.

On Friday night, after a busy day of meeting with someone for the volunteer work, and a long Skype chat with my boyfriend, I went to bed early around 10:35pm. I was proud of myself for going to bed so early because normally I get to bed around at least 11:30. Although I was managing my seizures well by going to bed early, I ended up having about ten seizures during the night (which is an estimation…since I was sleeping and waking up and going back to sleep in between each one). I woke up feeling sleepy and sore, so I needed to take it easy. I went for a short walk in the early evening, but my leg muscles were so sore that I couldn’t go too far. Today is Sunday, and I still don’t have as much energy as I’d like. Someone without seizures would just shrug their shoulders and call it ‘laziness’, but I need to make sure that I am in good shape for Monday, which is when I start my volunteer work. It’s also a little disappointing, since I thought I was ‘on track’ to at least be towards seizure free for a month. Something that I haven’t had for a long while!

Anyways, just thought I’d share my thoughts.  Maybe you can relate? Let me know! Hope you’re all having a great weekend! xox

daydreaming girl