Post Seizure Blues

This morning I woke up feeling moderately blah. Maybe it was because my dreams of having tame goats as pets were more exciting than this past weekend has been. This week in general has been really good, and I feel like I’ve been hitting my stride. I’ve been busy, and I have secured a volunteer position for the rest of the summer. I got to a place where I forgot what it was like to have seizures, and I wasn’t always worried about suddenly dropping into a seizure and losing control of my body.

On Friday night, after a busy day of meeting with someone for the volunteer work, and a long Skype chat with my boyfriend, I went to bed early around 10:35pm. I was proud of myself for going to bed so early because normally I get to bed around at least 11:30. Although I was managing my seizures well by going to bed early, I ended up having about ten seizures during the night (which is an estimation…since I was sleeping and waking up and going back to sleep in between each one). I woke up feeling sleepy and sore, so I needed to take it easy. I went for a short walk in the early evening, but my leg muscles were so sore that I couldn’t go too far. Today is Sunday, and I still don’t have as much energy as I’d like. Someone without seizures would just shrug their shoulders and call it ‘laziness’, but I need to make sure that I am in good shape for Monday, which is when I start my volunteer work. It’s also a little disappointing, since I thought I was ‘on track’ to at least be towards seizure free for a month. Something that I haven’t had for a long while!

Anyways, just thought I’d share my thoughts.  Maybe you can relate? Let me know! Hope you’re all having a great weekend! xox

daydreaming girl

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6 thoughts on “Post Seizure Blues”

  1. I can definitely relate. Thank you for sharing your story and strength with me. It helps to know that others are experiencing similar events and feeling misunderstood in the same way.

    1. You’re welcome! Thank you for sharing your similar experiences with me. It helps me to know that there are other people who are going through the same things with me, and it helps me feel less alone. 🙂

  2. The laziness label is something I became fixated on avoiding but then I realised my health was more important. I know I’m not lazy but I also know I have to listen carefully to my body. If your body is saying rest then that’s what you have to do. It can take me days to recover from the physical aches and pains and that’s without injuries. Do you think the excitement and stress of the volunteering could have triggered the seizures? I always feel I’m at risk when my brain is in over-drive mode but it’s so hard to avoid when you are trying to get on an enjoy life. Thanks for sharing, hope you feel more energised in the morning and good luck with the new role.

    1. Aww thank you so much Cassie for the different perspective! I think I really needed it! The excitement about the new volunteer role could have tipped me over the edge; I have been sick for a while and this is my first role as “something” in a while so it is very exciting. I also tend to get excited easily so I need to monitor that (without stifling who I am as a person).

      I also agree with what you said about listening to your body and not labelling it as laziness. Although I did have stuff I wanted to get done this weekend, I didn’t have the mental or physical capacity to do it, and that’s definitely not laziness. And if someone else thinks that’s laziness, they obviously don’t understand the entire story. I’m like you too, and I have avoided the laziness title, but good health and laziness are definitely two different things!
      Thanks for all the good luck!

  3. Im so excited that u had a good week and that u got the volunteer job!!!! thata amazing girl im soooso proud of you!!!!! Im sorry to hear about the seizres. that must have been really tough after having a break from them. i llve you and dont forgeg im here for you! xo

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