Hey friends! I am super excited to share with you the story of Bryce, of http://www.positiveepilepsy.com/ who has agreed to share his story on Life at Full Volume! How cool is that?! Bryce is a very positive stay at home dad and works hard to take care of his two children. He also aspires to someday work out of his home. He is all the way in New Zealand which just shows me how big the Epilepsy community truly is. Everyone with Epilepsy that I have come across are seemingly positive, and want to make a difference in some way.
This is Bryce’s story:
I am very involved with the NZ Epilepsy Foundation which is really exciting. Our goal is to get people with Epilepsy in New Zealand together as a group .http://epilepsyfoundation.org.nz/ (NZ Epilepsy Foundation)
There is no need to be shy. So, life is what you make it. I am always excited and try to stay positive. Epilepsy has added to my motivation. My Epilepsy started at puberty, which at this stage is about 20 years old. I do get frustrated with my Epilepsy, but I always remember that things could be a lot worse. I always think that I have 2 legs and 2 arms. I know people with physical disabilities live fulfilling lives, but I feel that it would be horrible without them !!
I have about 2-3 seizures a month. Over the last 15 months, I have had 3 occasions where I have gone 30 days seizure free, so that’s something to be excited about. Lets hope its leading to more improvements in the future. My seizures are often brought on by Stress or Emotions. I studied Landscape Design, but due to Epilepsy I have never been able to hold a drivers license which cuts back some employment possibilities.
So, I walk everywhere. One thing about it is it keeps you reasonably fit and healthy. When you look for employment, most employers want someone who can drive, and many are frightened of the word Epilepsy. That’s pretty sad. The general public have a real lack of understanding. I may look to do more tertiary studies at some stage.
If I did it may be in the area of I.T / Website Design. I would also like to work with Epilepsy.
My goal is to earn an income from home. I do love been at home with my children, but I don’t understand how some people don’t see having children as part of their future. But in saying that, there are times of boredom. This is due to not been able to do a lot, go anywhere. If only
I could drive. I sometimes wonder how others would feel if they had no license
for a month or so.
But, nevermind. As I said. Let’s have Epilepsy add to our motivation. The future is very exciting. Bring it one.
Love you all! xox