RIP For The Lives Taken by Epilepsy

andlelight vigil
Hey friends, I hope you liked my new category on fashion. Today I am a bit more serious though. I was planning on going to my Mum’s Unitarian church with her this morning, and I had set my alarm. I even planned my outfit!

My night was rough though and I ended up seizing all throughout the night. If you have ever had a seizure during the night it can be tough to wake up in the morning. I slept and slept, then ultimately I was able to wake to the morning sun. The first thing I said to myself was “Thank you for another day”. I was still mustering the energy to wake up when I got a text from my friend who is across the country. She told me that one of her friends had died from epilepsy. She proceeded to tell me how much I meant to her and how much she loved me. At first, it didn’t hit me super hard. Yes, it was ironic that I thanked the universe for continuing to give me another day. I have read stories about people who have died from Epilepsy, which made me so sad that it was hard to get through. I responded in kind and told her how much she meant to me and how much I loved her too.

Epilepsy is a funny chronic illness to live with. I know no other, but death is so possible due to falling in the shower and not “coming to” in time. You could choke on food if you start to seize while eating. I could go on and on. But I won’t. According to epilepsy.com, people can die of SUDEP (Sudden Unexpected Death from Epilepsy). I do not know the case of my friend’s friend, nor would I share it on here. If you are curious, SUDEP is “the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. No other cause of death is found when an autopsy is done. Each year, more than 1 out of 1,000 people with epilepsy die from SUDEP. If seizures are uncontrolled the risk of SUDEP increases to more than 1 out of 150. These sudden deaths are rare in children, but are the leading cause of death in young adults with uncontrolled seizures.” (epilepsy.com)
Studies suggest that there is fluid in the lungs, or the person was found face down in the bed when they passed.

There is no known cause for SUDEP. This is tragic. Even though I do not know the friend of my friend’s, I couldn’t help but cry for them and all of the other people who have lost their lives to Epilepsy. It is always so sad to lose someone from the Epilepsy Community.  I believe that there needs to be more recognition for it and we need to hold candlelight vigils for them. I am lucky to be alive today, and I thank the universe every day I am alive, even if I am depressed or feeling shitty. So if you, your child, spouse, best friend, have uncontrolled seizures, just realize that it is very serious. On the flip side, thank life for every day that they are here.

Light a candle for a moment to remember those who have passed from Epilepsy. We are in this together.

Lots of love xox

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4 thoughts on “RIP For The Lives Taken by Epilepsy”

  1. My very good friend’s brother was taken with this two years ago. (Just posted up poem I wrote at the time). He was 38. I spent months after that worrying myself senseless I wouldn’t wake up the next morning. It really brought home to me my own mortality.
    Someone said to me only last week, ‘it’s a shame you’ve got it, but, you know, it’s not going to kill you’. Ignorance is bliss, but I do hope not.

    1. Aw I am sorry to hear that your very good friend’s brother was taken from us by SUDEP. Yeah, no ignorance is definitely not bliss. This news left me with a heavy heart today and with the need to do something about it. I will check out your poem- haha sorry been a bad blogger lately.

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