Hey everyone! I hope you had a good weekend! I went to East Side Pride here where I live on Saturday, and it was a lot of fun. Today (Sunday) I slept a good portion of the day because I had exerted myself so much during the week.
Lately I have been reciting my favourite poems out loud before bed. Poetry is something that grounds me, and in a whirlwind of Epilepsy, I need all the grounding out there.
This is my favourite poem by e.e. cummings, and it was taped by my bedside in university. I saw it every single day when I swung my legs out of bed in the morning.
Dive for Dreams
dive for dreams
or a slogan may topple you
(trees are their roots
and wind is wind)
trust your heart
if the seas catch fire
(and live by lovethough the stars walk backward)
honour the past
but welcome the future
(and dance your death
away at the wedding)
never mind a world
with its villains or heroes
(for good likes girls
and tomorrow and the earth)
in spite of everything
which breathes and moves, since Doom
(with white longest hands
neating each crease)
will smooth entirely our minds
-before leaving my room
i turn, and (stooping
through the morning) kiss
this pillow, dear
where our heads lived and were.
silently if, out of not knowable
silently if, out of not knowable
night’s utmost nothing,wanders a little guess
(only which is this world)more my life does
not leap than with the mystery your smile
sings or if(spiralling as luminous
they climb oblivion)voices who are dreams,
less into heaven certainly earth swims
than each my deeper death becomes your kiss
losing through you what seemed myself,i find
selves unimaginably mine;beyond
sorrow’s own joys and hoping’s very fears
yours is the light by which my spirit’s born:
yours is the darkness of my soul’s return
-you are my sun,my moon,and all my stars
Hey friends! I recently did a TedxTalk all about Epilepsy and the challenges that many of us face with chronic illness. It was a really long and laborious process, but the pay off was remarkable. Take a look, and tell me “What is your hell of Chronic Illness??”
Love you lots xox
Hey friends!! I made a new YouTube video this evening! Like, Subscribe, and comment below!
My YouTube video!!
Hey friends! I hope you are doing well wherever you are in the world. I have been having an exhilarating week ever since TedxStanleyPark. (I will have my video up as soon as it is out!)
While I was walking my dog this evening, I was thinking about what it means to be an inspiration and my struggle with accepting this fact. This was potentially evoked by the fact that I won an Alumni Award from my middle school that I will be accepting at the end of the month. When I was first told that I was the recipient of the Alumni Award I didn’t really know why.
When I think about the past and resisting the idea of being an inspiration, I constantly didn’t want to be seen as inspiring because I was just a “normal person” trying to get through her life. I almost resented being called an inspiration because it made me feel even more different than my peers and friends. As an Epileptic (or PWE) it is easy to feel “different” because my neurotransmitters sometimes misfire, or don’t fire when they are supposed to. (If we are going to get technical here).
After Tedx, I realized that it’s OKAY for me to embrace being an inspiration to other people. I was talking to my friend Debra the other day, and she so eloquently put it that I have not let my Epilepsy define me, and I am not going through life as a “Broken person”. I am still persisting, despite my challenges. Yeah sometimes life sucks, and I have been struck with deep depression in the past. This past week I received a bracelet from my friend that said “my story isn’t over yet” with the semicolon symbol. Not everyone knows this, but Project Semicolon is now a pretty well known symbol for to remember people who have died by suicide, and to bring light to depression, addiction, and self-harm. I want to cry when I look at my bracelet, because it reminds me how far I have come. (Thank you Rikarux and Ryan).
According to the Merriam Webster Dictionary, Inspiration has several definitions. They are:
“Something that makes someone want to do something or that gives someone an idea about what to do or create; a force or influence that inspires someone”
“A person, place, experience, etc. that makes someone want to do something”
“A good idea”
So as we can see there are multiple meanings to what an inspiration is. Now that I look back on my past with wide eyes, and to my future with excitement fluttering in my tummy, I can say hell ya. I am an inspiration ❤
Hey guys! I did my first EVER VLOG talking about my experiences with Tedx the past few months. Check it out and subscribe if you’re interested!
My Brand New VLOG!!