My Identity is Chained to Epilepsy?

unhappy-coffeeHey friends! Happy Labor Day! If you are enjoying this Holiday, thank a Union worker who made this holiday possible.

This past weekend I have been more tired than I have ever been in my life. I ended up sleeping for several days. I have had some of my medications increased, which has increased my fatigue. Coffee is now my best friend. I am going to contact my Neuro’s Nurse tomorrow to express my concerns with her.

Lately though, I feel my identity is chained to my Epilepsy. Over the past few years, I feel as though Epilepsy has become my identity. I am happy to advocate on behalf of people with chronic health issues, but that’s all that I am now. Before my seizures were bad, I used to be a student, a health nut, and I LOVED to dance (specifically Zumba). My seizures have decreased, but that is due to the increase of medications which are making me tired like you might not believe.

I feel like it is easy for a person to lose sight of who they are. In my case, I feel tired all the time and I can’t really talk to others about things that are NOT related to my health.  I love fashion, clothes, and styling outfits. I probably got that from years of watching What Not to Wear. Lots of physical activities I used to do I can’t do anymore. My health has been in limbo for 5 years, which is hard to manage.

I’m in an unhappy place right now. If you have Epilepsy, know you’re not alone. If you are a friend, spouse, sister/brother, etc just try to understand that we can go through these rough times.

Lots of Love,

Sita Gaia xox

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