Living with a Vagus Nerve Stimulator: Is it Worth it?

Hey BB’s

Living wih VNS Canva     This is almost the one year anniversary of getting my Vagus Nerve Stimulator implanted. A Vagus Nerve Stimulator (VNS) is like a pace maker, except for the brain. A little device is implanted right below the collarbone, on the left  and a wire is attached via the vagus nerve. (Which is on the left side of the neck). It is set to send little pulses at a rate that is determined by your epileptologist/neurologist. It can help to stop  a seizure, or make it less aggressive by swiping a magnet that you wear like a watch on your right wrist. I’m still waiting for someone to ask me the time as I look super rich by having an iWatch. Regardless, the pulses feel very powerful!

Is it worth it? For me, it was 100% worth it. I was at a point where my seizures were so frequent that my epilepeptologist bumped me up to Urgent, in terms of receiving it. There are only TWO doctors in the province that I live in that do it, so there was a bit of a wait, but it was worth it. My seizures have decreased a lot, and I can actually feel an aura now! I am travelling right now- and when there was a huge drop in pressure I was able to wave my magnet over the VNS device to help prevent from seizures.

The one thing that bothers me about the Vagus Nerve Stimulator is that sometimes the pulses run through my voice box, making it sound a little strangled. (This is clear proof from my Epilepsy Nurse who said she could hear a difference in my voice. I know tonnes of people think their voices sound different with no change, but there has been, my friends). It may not affect you, as you may not need the pulses turned up so high, It totally depends on case by case, and no one is a cookie cutter.

If a VNS is your best option, I would go with it! You never know how much it could change your life for the better. I know it has for me! My Fiancee has been able to stop seizures while I am having them, and I can prevent them if I feel an aura.

Lots of love,
Sita Gaia xx

PS- if you aren’t already doing so- follow me on me on Instagram @ joeyjo422 

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