Tag Archives: Diet

Getting Rid of Coffee: Day 1

 

sad coffee

If you have been following me for a looong time you will know that I went through a period of cutting caffeine out of my every day life. LOL that didn’t seem to last.
(It was SO long ago I can’t find the post. My apologies!!)

I used to only drink tea, but have turned to coffee to keep me awake due to the fatigue from my meds. I love Iced Coffee (No danger of burns!) and I always order it from Starbucks with Almond milk and a shot of Vanilla. Now, despite my obsession with coffee- I have noticed that it has suppressed my appetite. I can easily skip breakfast and lunch. I saw this in the TedxClapham talk by Dave Chawner where he references “coffee blocking”. You can watch it here.

So essentially I have been coffee blocking and I am scared. So the first step is to cut out coffee and go back to tea. I never lost my appetite with tea, so that should be good. Also- maybe it’s my medications? :/ Regardless, I am sad about this life change but it is for the better.

Love you lots,

Sita & JoJo

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Alternative Ways of Dealing with Seizures

There are so many alternative ways of treating seizures in addition to medication, it’s amazing. Do they all work? Of course not! But some may work for individual cases, and that is worth exploring.

I used to be sceptical of alternative approaches of fighting seizures. Since it wasn’t a little pill, what good was it going to do? Yet, after trying medication after medication, where my seizures weren’t going away, I began to broaden my horizons of what ‘medicine’ could mean to healing the body.

I’ve tried countless alternative methods of helping with the seizures: bio-wave feedback, acupuncture, massage, meditation, listening to calming music, to name a few. For this post I am only going to focus on a few of these techniques, or else it would be a very long blog post! None of these techniques are ‘cures’ for the seizures, but they make my symptoms feel less intense.

Listening to Music
The other day I got out of the shower and into my house coat and I didn’t feel quite right. This was probably because the shower is a stand alone shower so there’s less room for the air to come in and out. Some times too much heat makes me feel a little seizure-y, so I always make sure to take quick showers. Anyways, I wrapped myself up in my bathrobe and lay flat on my bed. I felt kinda dizzy (pre seizure symptoms) so I slipped on my ipod and listened to one song, over and over again. Somehow, listening to that song really helped. It just calmed me completely and I was able to get on with my day. I didn’t need to take an emergency seizure pill and feel groggy the rest of the day. In fact, I felt much much better.

Touching Pressure Points on the Face
This is actually meant to relieve stress, but since most of my seizures are caused by stress, it’s a great way to help me decompress if I feel like I am too tense. I was taught this by my acupuncturist: What you do is press (or tap) with two fingers above your eyebrows for fifteen seconds, then you move to your temples, and then you move to the fleshy bits below your eyes, and then you tap in the crevasse area under your nose. The last two parts are your chin for fifteen seconds, and then you tap the space between your collar bone. It sounds crazy, but trust me that I have done this when I have been completely stressed out, and afterwards I was like a deflated balloon. For a visual, visit this website: http://successwitheft.com/how-to-do-eft-emotional-freedom-technique/

Touching Pressure Points on the Thumb

My Acupuncturist taught me that if I apply firm pressure to the meaty part of my thumb (you know the part of your thumb where it looks like a drumb stick) it can help stop seizures. I wasn’t so sure about this technique at first. Sometimes I don’t even get enough of an aura to be able to control my mind and thoughts to be able to think in my mind “Okay, I will push the meaty part of my thumb right now!” But one night I was seizing up a little bit in bed, so I rolled over and applied firm pressure to my thumb with my other hand. The seizure feelings dissipated as quickly as they came. Okay, let’s take this a step further. Last night I didn’t have one of my medications because I wasn’t able to refill it in time. Every time I felt a seizure coming on- BAM I applied strong pressure to my left thumb with my right thumb for about thirty seconds or more. The seizure melted away. If it wasn’t a medication thing it would have stopped, but I was doing it through the night. Each time though it stopped the seizure! My acupuncturist told me that touching the thumb there is connected with seizure control, which is why it works. Cool, hey?

Massage

I’ve only tried massage once for seizure control, but baby it worked like a charm! The day before I had my massage I had a really weird aura, and the day I had my massage I was really concerned about having a seizure because I had a big event that I was hosting. Needless to say, after the massage, I was so much more relaxed, and it staved off the seizures that I was expecting for a few more days. I am planning a little trip in a month and I am definitely going to get a massage before my plane ride, since I am so sensitive to the pressure of the airplane. For some dumb reason the change in pressure of the airplane causes me to seize. So my game plane is to get a massage right before my flight and to take a couple of ativan as I board the flight. Not necessarily the ideal method, but I don’t like it when stewardess’ call 911 when I have a seizure! I have to pay for it every single time. 😦

Alternative Diet

My diet is kind of like a weird version of the Atkins diet. Except I’m not dieting. I eat a lot of protein, very few carbohydrates, no caffeine, and I am slowly trying to cut out sugar. (Cutting out sugar is the hardest!) I’ve read that altering your diet can be beneficial to lowering seizures, so I’m trying to see if this will help. Eliminating caffeine from my diet definitely has helped, and I think having less sugar will help, because I’ll have less high and lows in my energy swings. I mean, don’t get me wrong. I love sugar! It’s always weird being the one at the table saying that you won’t have any cake or pie. Just in the long run, I think it will help with the seizures. I’m not following the Ketogenic Diet to a T- (as I’m not on a diet) bit if you’re interested in the Ketogenic Diet, check out this link!

http://www.epilepsyfoundation.org/aboutepilepsy/treatment/ketogenicdiet/