Tag Archives: Holidays

The Holly hell of The Holidays

Hey bb’s,

Holiday season is upon us! I love the holidays, despite that where I live we rarely get a white Christmas, it is still fun to put up your tree, buy gifts, and write Christmas cards.

I asked WeYou're invited to anfor  addresses for so many Christmas cards, and since  we are living strange and worrisome times, multiple friends asked why I could have their mailing address. Is sending Christmas cards that old school?! I guess so.

Since I have made multiple big changes in my life and I am still adjusting- my neuropsychiatrist told me I am not allowed to work. He told me I need to relax more, and I had to ask him what he meant by “relax”. I am not a relaxer by nature- I love gallivanting around, seeing friends, being in Starbucks, making new plans and cleaning the house. (OK it’s an apartment but it’s easier to clean than when I was living with my parents.). I also love Fri-dates and Satur-dates with my fiancee. It has been hard to relax, as I got all of my Christmas shopping done and sent out a million Christmas Cards. (OK only ten lol).

Like anything, there is always a downside to Christmas. My epileptologist told me that Christmas is the biggest time where his patients have seizures. Last year I was out with seizures for 5 days after Christmas day. I find it exhausting to do two back to back things on one weekend, and as much as I love my family, too much family time can be too much! Despite being an extrovert by nature, I get sleepy earlier than most people. I am grateful that I am in a family that understands when I need a nap. My fiancee also wants to make sure that I am not “over doing it” so for that I am eternally grateful.

If you have a personal friend or family member in your life with a chronic illness, or even mental health issues, please be mindful that we are doing the best we can. We don’t have tonnes of energy, and sometimes pain, or  feeling overwhelmed gets to the best of us. The best gift you could give us is kindness and understanding that we are sometimes extra tired. If we have to miss out on something, such as due to having too many seizures, we don’t mean to.

Lots of love,
Sita & Jojo

P.S. Yup that’s the tackyaf tree that me and fiancee have. It was my idea, of course 😉

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Happy Holidays From me to You!!!

215085_10150148564450776_3032643_nHappy Holidays from me to you!! I hope you have a wonderful holiday season, whether you celebrate Christmas, Kwanzaa or Hannukah. (Or all three!) I know this time of year can be hard on some, so try to keep your stress levels low as the holidays needn’t be perfect. If you are alone this Holiday season, try to phone a friend and spread some of the cheer.

I am super busy during this holiday season, but I wanted to share it with you!

May you be happy, healthy and full of spirit. A new year is coming, so that is always room for potential growth!

Love you all! xox

UPDATE!!!!!!!

Hey guys!

nic_gingerman_hatI know I haven’t posted in over a month. I have been going through a ton of changes, and I haven’t really been in the mental space to share them with everyone and anyone. I figured I might as well get back on track though. I am starting to feel more like my old self. I am doing some ‘bio feedback therapy’. This kind of therapy doesn’t involve talking at all. It’s all about strengthening different brain waves by doing neuro puzzles on a computers at a doctor’s office. Sound crazy? It kinda is. I’ve had five sessions so far. They’re pretty cool. I am getting out as much as I can. Seeing friends has been quite therapeutic, and they’re all really supportive which has been great. I’m pretty excited for the holidays! My family isn’t super crazy wild about the holidays, we’re just more chill about the holidays which is nice.

Last night I watched “Love and Other Drugs” with my Mom. I had seen it before, either on my trip to Vancouver or my returning flight to Ottawa. Either way, all I remember is that the first time that I saw it was on a teensy Air Canada screen. It stars free loving Jamie Randall (Jake Gyllenhaal), who is trying to make it big in the drug rep world. Jamie has the reputation of floating from job to job without going far, but there’s something about this job that seems to click with him. Of course this movie isn’t all inspiration. Jamie is a bit of a “woman lover” (my blog friendly way of saying that he loves to get it on with women). His tactics even mystifies his drug rep, Bruce (Oliver Platt Who is also in “The Big C” which is on Nettflix and you should check it out if you haven’t already!). Everything changes when Jamie meets Anne Hathaway’s character, Maggie Murdoch. If you haven’t seen the movie, I will try not to give away too much. love-and-other-drugs-movie

At age 26 Maggie has been diagnosed with Parkinson’s disease. (Which is extremely rare. Usually only adults in their fifties are diagnoses with Parkinson’s unless it runs in the family). Jamie finds himself falling for her and Maggie finds herself angry that he keeps sticking around because she is getting sicker and sicker. According to the premise of this film there is no cure for Parkinson’s, so I can understand why Maggie would distance herself from a romantic partner. But anyways, Jamie is confused as to why Maggie doesn’t want him around. Although I am not dying, not in the least, I found that I could relate to Maggie’s point of view.  There have been times where I didn’t know why my boyfriend would want to be with me when I was constantly having seizures, and my life had been diminished to hanging out at home, cancelling plans, lying in bed, having mental breakdowns, and sudden hospital visits. Why would anyone want that? If you know me well you will know that I will argue that I never want to be reduced to my medical condition. I hate being referred to as an ‘epileptic’ because I feel like it makes me sound like a brand of person. I also just think that the word itself sounds harsh.

But you see what I did there? I just reduced myself to a medical condition on my own. I didn’t have anyone do it for me. My boyfriend sees me as a person way beyond the epilepsy. Jamie saw Maggie as a person beyond the Parkinson’s. So I guess in a way, seeing the movie was a good way to see the ‘other perspective’. My boyfriend doesn’t see the epilepsy as me. He wants to help that little aspect of me, but he sees ‘Me’ as something way more than just a chronic condition. He sees me as Sita, being awesome and amazing, funny, silly, pretty, smart, all of those things that you would want in a partner. Even though it was a romantic comedy, I would argue that the medical aspect and Anne Hathaway’s charachter brought it to a different level. Grab some friends, convince your girlfriend, boyfriend or spouse, get some wine and cozy up and watch it. It’s a pretty good movie. Oh, and be sure to tell me what you think.

One of the most recent photos I could find that wasn’t a selfie. Hope you’re doing well!! xoxo

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