Tag Archives: Music

AMAZING NEWS! You Don’t Wanna Miss This!!

DSC_0313Hey guys, so I have some pretty exciting news! This is the landmark of being seizure free for one month! I made it! It feels like my birthday! Wait, even BETTER than my birthday!! I wish I could have cake and presents for it; it feels like such a milestone. I hope this is actually the beginning of seizure free living, and not just a lucky streak. Please cross your fingers for me. I need all the good vibes I can get! Here’s a quote from a song that’s been keeping me strong and making me feel inspired. You can do whatever you want, as long as you believe it’s possible. Why WON’T it work out?!

Everybody is a star

It don’t matter who you are

Keeping on reaching for your dreams

It aint as crazy as it seems

Own It” -Black Eyed Peas


Love you all! Hope this has helped those out there who are struggling with seizure control. I’m right there with ya! xox



Alternative Ways of Dealing with Seizures

There are so many alternative ways of treating seizures in addition to medication, it’s amazing. Do they all work? Of course not! But some may work for individual cases, and that is worth exploring.

I used to be sceptical of alternative approaches of fighting seizures. Since it wasn’t a little pill, what good was it going to do? Yet, after trying medication after medication, where my seizures weren’t going away, I began to broaden my horizons of what ‘medicine’ could mean to healing the body.

I’ve tried countless alternative methods of helping with the seizures: bio-wave feedback, acupuncture, massage, meditation, listening to calming music, to name a few. For this post I am only going to focus on a few of these techniques, or else it would be a very long blog post! None of these techniques are ‘cures’ for the seizures, but they make my symptoms feel less intense.

Listening to Music
The other day I got out of the shower and into my house coat and I didn’t feel quite right. This was probably because the shower is a stand alone shower so there’s less room for the air to come in and out. Some times too much heat makes me feel a little seizure-y, so I always make sure to take quick showers. Anyways, I wrapped myself up in my bathrobe and lay flat on my bed. I felt kinda dizzy (pre seizure symptoms) so I slipped on my ipod and listened to one song, over and over again. Somehow, listening to that song really helped. It just calmed me completely and I was able to get on with my day. I didn’t need to take an emergency seizure pill and feel groggy the rest of the day. In fact, I felt much much better.

Touching Pressure Points on the Face
This is actually meant to relieve stress, but since most of my seizures are caused by stress, it’s a great way to help me decompress if I feel like I am too tense. I was taught this by my acupuncturist: What you do is press (or tap) with two fingers above your eyebrows for fifteen seconds, then you move to your temples, and then you move to the fleshy bits below your eyes, and then you tap in the crevasse area under your nose. The last two parts are your chin for fifteen seconds, and then you tap the space between your collar bone. It sounds crazy, but trust me that I have done this when I have been completely stressed out, and afterwards I was like a deflated balloon. For a visual, visit this website: http://successwitheft.com/how-to-do-eft-emotional-freedom-technique/

Touching Pressure Points on the Thumb

My Acupuncturist taught me that if I apply firm pressure to the meaty part of my thumb (you know the part of your thumb where it looks like a drumb stick) it can help stop seizures. I wasn’t so sure about this technique at first. Sometimes I don’t even get enough of an aura to be able to control my mind and thoughts to be able to think in my mind “Okay, I will push the meaty part of my thumb right now!” But one night I was seizing up a little bit in bed, so I rolled over and applied firm pressure to my thumb with my other hand. The seizure feelings dissipated as quickly as they came. Okay, let’s take this a step further. Last night I didn’t have one of my medications because I wasn’t able to refill it in time. Every time I felt a seizure coming on- BAM I applied strong pressure to my left thumb with my right thumb for about thirty seconds or more. The seizure melted away. If it wasn’t a medication thing it would have stopped, but I was doing it through the night. Each time though it stopped the seizure! My acupuncturist told me that touching the thumb there is connected with seizure control, which is why it works. Cool, hey?


I’ve only tried massage once for seizure control, but baby it worked like a charm! The day before I had my massage I had a really weird aura, and the day I had my massage I was really concerned about having a seizure because I had a big event that I was hosting. Needless to say, after the massage, I was so much more relaxed, and it staved off the seizures that I was expecting for a few more days. I am planning a little trip in a month and I am definitely going to get a massage before my plane ride, since I am so sensitive to the pressure of the airplane. For some dumb reason the change in pressure of the airplane causes me to seize. So my game plane is to get a massage right before my flight and to take a couple of ativan as I board the flight. Not necessarily the ideal method, but I don’t like it when stewardess’ call 911 when I have a seizure! I have to pay for it every single time. 😦

Alternative Diet

My diet is kind of like a weird version of the Atkins diet. Except I’m not dieting. I eat a lot of protein, very few carbohydrates, no caffeine, and I am slowly trying to cut out sugar. (Cutting out sugar is the hardest!) I’ve read that altering your diet can be beneficial to lowering seizures, so I’m trying to see if this will help. Eliminating caffeine from my diet definitely has helped, and I think having less sugar will help, because I’ll have less high and lows in my energy swings. I mean, don’t get me wrong. I love sugar! It’s always weird being the one at the table saying that you won’t have any cake or pie. Just in the long run, I think it will help with the seizures. I’m not following the Ketogenic Diet to a T- (as I’m not on a diet) bit if you’re interested in the Ketogenic Diet, check out this link!


Tonic Clonic Seizures: I Really Need Your Help!!

So today was kind of a weird day. It started off normal, as these types of days usually do. I woke up to a gentle seizure, and although I was disappointed, I got on with my day and had breakfast and took my medications along with my iron pill. I drove around a bit with my for a bit, and at one point, she stopped for gas and asked me if I wanted to come with her to get some groceries. I figured ‘May as well just sit in the car. I’ve already had a couple seizures today.’ My mom told me that she’d get the groceries as quickly as possible so I wouldn’t be waiting in the car for too long. My seizures generally last for about a minute, so neither of us were too concerned.

I’d left the radio on, just to keep me company, and because I like the music on it. I was feeling “off” though. Some of the songs made me feel like I could go into that “seizure head space”. Basically everywhere I looked was triggering, so the music was just extra triggering. When one of my favourite songs, “Some Nights” by Fun, came on, I fell into a seizure. It wasn’t my normal seizure though. Both legs were pulsing non stop, and both hands were shaking, My face was funny, and I would have grabbed my emergency seizure medication if a) I had thought to have grabbed it and b) if I could have got my hands under control. I had motor control to turn the radio off, to see if that would stop the seizure, but both legs kept pulsing and shaking like crazy, and my hands were barely under control, so I turned it back on. I had my seat belt on, and I wondered if being constricted was making it worse so I managed to undo my seat belt but it did nothing. I reclined my seat but I just continued to shake and shake and shake. If I had been in a standing position I would have been toast.  It must have lasted at least twenty minutes. My seizures never last that long, so when my mom finally came back, I was barely able to explain to her what happened, because my tongue was all swollen. We went immediately to the hospital where I was treated.

Anyways, my point of this story is: Does this sound like a Tonic Clonic/Grand Mal Seizure? I have had about three of them in my life so I am not very familiar with them. I’m going to tell my neurologist about this, but I was just wondering if you have any thoughts? Oh, another important point, gross but crucial i didn’t wet myself as it says on the list of symptoms on clonic tonic Seizures. If you have any questions, feel free to ask. Love you all!  xox